I share this, not because I want people to know my business. I share this for one reason, to help people, & ultimately SAVE LIVES.
I have been suffering 'fibromyalgia" symptoms & my health rapidly declining for over a year, (realistically, many years).
You can read about my symptoms in THIS post.
I finally have an answer.
It might not be your answer, but it might.
It might help someone you love who is suffering.
What I have is FATAL.
If left untreated, IT WILL KILL YOU.
See my urgency in getting the word out? This is serious shit.
I'll spare you the stories & details of how I got from there to here & just get the important points across.
I insisted on an MRI, because my liver HURT.
and from those results & further blood tests to confirm,
HEMOCHROMATOSIS. (overview HERE)
Never heard of it right? I hadn't either.
Even when I looked it up, at first I wasn't too concerned, "Iron Overload Disease."
Problem is, hemochromatosis people have a genetic blood disorder. One that causes them to absorb excess iron. Iron doesn't have a way out of the body, so it builds up, pretty much from birth.
The iron builds & accumulates & eventually there is so much in the blood, that it starts being deposited in areas where it shouldn't be . . . Liver (like me), heart, pancreas, other organs, bones, joints, muscles . . . .
Basically, the blood poisons the body.
GOOD NEWS is . . . it is totally treatable if caught before there is organ damage.
Treatment is awesomely medieval . . . bloodletting.
The only way to get iron out of the body, is to remove blood from the body. It's called "phlebotomy", more on that HERE. I had my first one yesterday. You have to do them often when your levels are super high, then once you're in a safe range, you go less often, but it is a lifelong thing.
Most doctors don't even know about this disease, which sucks ass, because it is VERY COMMON. It is misdiagnosed & people DIE.
If you have some of the symptoms (HERE), get tested.
If you've been sick & doctors can't figure out why, get tested.
If you don't have insurance & you're using that as an excuse, get tested.
FATAL, people. DEADLY.
Your blood poisons your body, till you DIE.
SO, for the love of everything holy (that's YOU, btw), get fucking tested.
SHARE this information.
This is a SUPER COMMON DISEASE, but doctors don't know about it, so it gets missed EVERY FUCKING DAY, and people DIE. (here's a story of 2 local Utah people, 35 & 38, died from it because there doctors didn't know to check for it)
Why don't doctors know about it? My guess is that because there are no pharmaceuticals to treat it, which means Big Pharma certainly won't sponsor research for it . . . so, ya. They're asshats, but we already knew that.
You don't need an MRI.
Start with these 3 tests:
1. Ferritin level
2. Serum Iron Level
3. TIBC (total iron binding capacity)
So. There it is.
PLEASE. PLEASE. PLEASE. Share this information. It could save someone's life. For real.
People are dying from this, when it is TOTALLY TREATABLE.
Please help spread the word, share with friends & loved ones.
Press the little Facebook icon at the bottom of this post & help me spread the word, PLEASE & thank YOU ;)
No one should have to die from this.