chronic fatigue

you are the medicine. by Erica Kathleen

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so, this whole, healing thing. it’s pretty amazing.

my last doctor appointment, my blood doctor said, “I’m so happy for you! I’m so proud of you! Not many people would willingly do this work. They’d rather keep going from doctor to doctor.” Now, I don’t know if that’s true or not. I for sure, went to a shit-ton of doctors. Specialist after specialist. I wanted an answer. I wanted a reason for the pain. I wanted an explanation for why I felt like I was dying. I told him, “I just wanted to know why! And now that I know, and I know that I have the power to change it, I’m going to do everything in my power to fix it!” He smiled. He hugged me. Again, he said, “I’m really proud of you.”

I still have my blood disorder. It’s genetic. So I’ll always be dealing with that. But it’s not taking center stage anymore. It’s not getting the limelight.

Eventually, I did get my answer. I got my reason. I got my explanation. Complex PTSD.

You may think, like I did, that this is a mental thing. You may think, like I did, that it’s “all in your head.”

I was wrong. VERRRY wrong.

Complex PTSD (C-PTSD) is a disregulation of the nervous system. Meaning, your nervous system is out of whack.

Your nervous system is a pretty important thing. It’s in charge of healthy digestion, sleep, immune system functioning, heart rate, blood pressure, breathing, relaxation, digestion, regeneration and SO MUCH MORE.

Do you even know what C-PTSD can do to your body?

Medically unexplained physical symptoms . . .

chronic pain

sleep difficulties

irritability

poor concentration

depression

anxiety

dysautonomia

irritable bowel syndrome

nonulcer dyspepsia

fibromyalgia

chronic fatigue syndrome

autoimmune diseases

rheumatoid arthritis

psoriasis

insulin-dependent diabetes

thyroid diseases

and a TON more

You starting to get the idea? Your nervous system is in charge of a LOT of important stuff. So, when your nervous system is messed up . . . it can wreak havoc on your body.

I could go on & on, but at the risk of sounding like a biology teacher. I’ll leave it at that. If you' wanna know more, THIS book has a LOT of scientific stuff on C-PTSD, which personally, I find fascinating ;)

Anywhooo . . . one thing that I find absolutely LIBERATING . . . is that I’m in charge here. I’m responsible for my healing.

No doctor, no needle, no pill, no infusion, no surgery, no procedure . . . no, me laying there & having someone else responsible for fixing me.

Me.

Yes, there are people who are helping me on this journey. Yes, I am seeing a therapist. Yes, I am taking a class. Yes, I am reading books.

But do you see? Without my effort. Without my determination. Without my willingness to DO this hard work, nothing would change.

and so, I offer you my newest art piece.

“I am the medicine.”

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I’m pretty sure I’m gonna get this tattooed on my bod somewhere . . . maybe above my port or the iliac crest of my pelvis? not sure yet ;)

but

it’s true.

I AM THE MEDICINE.

and my friends,

YOU are the medicine.

You are YOUR medicine.

We got this.

We can do this.

We are doing it.

We are healing.

and I’m so fucking proud of us.

xo, EK

ps. “I am the medicine” is an 11x17” (BIG!) original mixed media painting, on mat board & is up for a 24 hour LIVE Auction over on Instagram HERE. If you don’t have an IG account & want to bid on it, shoot me an email HERE & let me know your highest bid. I’ll bid for you ;)



NOT fibromyalgia. What I have is FATAL. (please SHARE) by Erica Kathleen

                 Original painting HERE           Prints HERE

                Original painting HERE         Prints HERE

I share this, not because I want people to know my business. I share this for one reason, to help people, & ultimately SAVE LIVES.

I have been suffering 'fibromyalgia" symptoms & my health rapidly declining for over a year, (realistically, many years).

You can read about my symptoms in THIS post.

I finally have an answer.

It might not be your answer, but it might.

It might help someone you love who is suffering.

What I have is FATAL.

If left untreated, IT WILL KILL YOU.

See my urgency in getting the word out? This is serious shit.

I'll spare you the stories & details of how I got from there to here & just get the important points across.

I insisted on an MRI, because my liver HURT.

and from those results & further blood tests to confirm, 

HEMOCHROMATOSIS. (overview HERE)

Never heard of it right? I hadn't either.

Even when I looked it up, at first I wasn't too concerned, "Iron Overload Disease."

Problem is, hemochromatosis people have a genetic blood disorder. One that causes them to absorb excess iron. Iron doesn't have a way out of the body, so it builds up, pretty much from birth.

The iron builds & accumulates & eventually there is so much in the blood, that it starts being deposited in areas where it shouldn't be . . . Liver (like me), heart, pancreas, other organs, bones, joints, muscles . . . .

Basically, the blood poisons the body.

GOOD NEWS is . . . it is totally treatable if caught before there is organ damage.

Treatment is awesomely medieval . . . bloodletting.

The only way to get iron out of the body, is to remove blood from the body. It's called "phlebotomy", more on that HERE. I had my first one yesterday. You have to do them often when your levels are super high, then once you're in a safe range, you go less often, but it is a lifelong thing.

Most doctors don't even know about this disease, which sucks ass, because it is VERY COMMON. It is misdiagnosed & people DIE.

If you have some of the symptoms (HERE), get tested.

If you've been sick & doctors can't figure out why, get tested.

If you don't have insurance & you're using that as an excuse, get tested.

FATAL, people. DEADLY.

Your blood poisons your body, till you DIE.

SO, for the love of everything holy (that's YOU, btw), get fucking tested.

SHARE this information.

This is a SUPER COMMON DISEASE, but doctors don't know about it, so it gets missed EVERY FUCKING DAY, and people DIE. (here's a story of 2 local Utah people, 35 & 38, died from it because there doctors didn't know to check for it)

Why don't doctors know about it? My guess is that because there are no pharmaceuticals to treat it, which means Big Pharma certainly won't sponsor research for it . . . so, ya. They're asshats, but we already knew that.

You don't need an MRI.

Start with these 3 tests:

1. Ferritin level

2. Serum Iron Level

3. TIBC (total iron binding capacity)

More about testing HERE

So. There it is.

PLEASE. PLEASE. PLEASE. Share this information. It could save someone's life. For real.

People are dying from this, when it is TOTALLY TREATABLE.

Please help spread the word, share with friends & loved ones.

Press the little Facebook icon at the bottom of this post & help me spread the word, PLEASE & thank YOU ;)

No one should have to die from this.

Thank you.

Peace,

XO Erica

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